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Old 03-30-2017, 01:46 PM
wordsmithy wordsmithy is offline
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Join Date: Dec 2011
Location: Westchester, NY
Posts: 45
10 yr Member
wordsmithy wordsmithy is offline
Junior Member
 
Join Date: Dec 2011
Location: Westchester, NY
Posts: 45
10 yr Member
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My neuro put me on the list today for participating in this clinical trial of GZ/SAR402671 also known as ibiglustat. I have a GBA mutation and have been waiting for this moment. But she said something interesting: as someone with mild disease progression--at this point--I should consider carefully whether I want to risk the side effects. So now I am reading all I can of what those potential side effects might be. Jumping the gun, as usual. But she said, recruitment should officially begin soon, possibly this summer.
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"Thanks for this!" says:
eds195 (03-30-2017), olsen (04-03-2017)