Quote:
Originally Posted by KATO
My daughter, grandaughter and my mother. We are all a little different but share a lot of symptoms. I by far the worst. Thanks. No, I have not been tested, as far as I know. Still haven't heard from blood test.
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There is no blood test or DNA test yet for hEDS. It is clinical and is proven by a series of criteria and depending on questions asked about your family.
So I assume that your female relatives have symptoms worse than yours... maybe minus the neuropathy. Would you mind telling me what their symptoms are? It would also be to your benefit to compile a list of symptoms of theirs and yours for the doctors so you can be seen by a geneticist as they are hard to get into. I will be happy to share any information and answer any questions that I might be able to help with on this long journey. It is hard to find someone who is in such a similar situation.