I have briefed only:

Chapter 5
Qualitative substudy

(its great, at least because it contains comments one might expect to find in 'social media,' though none were found there during their trial).

of:

Qualitative substudy - DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis – a randomised controlled trial - NCBI Bookshelf

Apparently published by DiPALS or some of their members . . . :

and apparently a public document (full scale book)

Publication date is June, 2016, several months ago.