I have briefed only:
Chapter 5
Qualitative substudy
(its great, at least because it contains comments one might expect to find in 'social media,' though none were found there during their trial).
of:
Qualitative substudy - DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis – a randomised controlled trial - NCBI Bookshelf
Apparently published by DiPALS or some of their members . . . :
and apparently a public document (full scale book)
Publication date is June, 2016, several months ago.