Hi MrsKnot,

I am so sorry for what your son is going through. I know it must be very hard on you as Mom.

Having a crush injury and multiple surgeries makes for a complicated medical situation that is potentially difficult to untangle. Nerve pain and symptoms in the foot can come from a variety of sources besides CRPS, an injury further up, an entrapment from scarring, even a problem at the spine. People can have nerve issues from positioning or even how they slept. One of my doctors at a major medical center told me of a case they were convinced was CRPS but turned out to be deep seated infection. It can really take diligence to sort out.

You didn't say what kind of surgeries your son had or where his injury was. I personally feel it very important to rule out all other causes and treating accordingly before accepting diagnosis. Sometimes this requires specialists outside the box and additional work up and imaging. Physical Medicine, Peripheral Nerve Surgery, neurology and orthopedics may have an alternate view from the pain management doctor. It is important to keep treating the pain no matter the cause but you can keep searching for answers in the meantime.

I hope that your son finds relief and healing soon. He has been through an awful lot. Please tell him to hold on to hope. If he does have CRPS 80% of people improve over time. If he has another issue, even a complicated one, they may yet be able to find it and treat accordingly.

Hang in there Mom, we are sending good vibes and healing love,