My neurologist called me this morning to tell me I have new lesions and am having a relapse (no surprises there). We discussed going back on a medication called Tysabri, which I've taken in the past, to try to reduce future relapses. While I don't have much faith in the med, and there's no evidence it will prevent the progression of symptoms like fatigue and/or cognitive problems (which aren't always related to new lesions/relapses), I agreed to go back on it because I think it will make my husband happy.

Taking TYSABRI(R) (natalizumab)

My neuro's secretary is going to start the paperwork today. I'll probably have to go to the office sometime soon to sign ****. I don't know how long the program and insurance company approval process will be, so I don't know when I'll have my first infusion. The last time I was on Tysabri, it was relatively new, so I had to drive into Boston. Now I'll be getting my treatments 10 minutes up the road.

As this episode resolves, I HOPE I can regain SOME KIND OF CONTROL back and can stop sleeping my life away, even though I know from experience I won't be able to get back to exactly where I was before.


We got hot water back around noon yesterday, but when I showered I quickly washed all the important things very quickly just in case we lost it again lol. Unfortunately I have to do that every time I take a a shower because I lose hot water so often.

The MA law regarding tenants' rights to hot water is pretty tough, but the catch is it gives the landlord 24 hours to make repairs after the tenant gives written notice. It also requires the landlord maintain the hot water delivery system in good working order. They would say they are constantly doing repairs to keep the system working no matter how it effects their residents.

What really ****es me off is they never provide us with any kind of notice when there is a maintenance issue and the water has to be, or will be shut off, or we won't have hot water.

The purpose of the paragraph in the lease regarding utilities is really for the protection of the landlord, but vaguely mentions they will provide us with heat and hot water. There's no out there. None.