I saw my doc today. I think she thought I was completely off my rocker until I told her this biotinidase expert called me from Detroit. Not surprisingly, she didn't know what biotinidase was. She Googled it while I was with her and pulled up one article or research report after another written by this doctor in Detroit. I think it gave me credibility.
She said she was happy to order the biotinidase test, but warned me, "I'll have no idea what to do with the results." I assured her that I knew that, and that hopefully Dr. Wolf would be able to offer some guidance. She was happy to hear that, but then also said that worst case, she would make some calls and see if she couldn't find someone to make sense of it.
Once again I'm in that "please give me bad test results" place.