Thanks for your reply.
I'm from Israel. Money is not an issue right now, and I also have an insurance.
Before we had our second pregnancy we did some gene testing and they found a mutation in IKBKAP gene IVS20DS.
Another genetic thing I'm trying to explore are those papules I have on my palms and feet, which I think are Acrokeratosis veruciformis which involves ATP2A2 gene.

I think I also see petechiae on my skin.

Any idea about these?

I have started today to take some supplements: B complex, Alpha lipoic acid and probiotics.

Did another run of blood tests yesterday, RNP is again high - 2.2(prev was 1.5), ANA pattern and titer are still WIP, i really pray it will return negative as last time.

I should see another neurologist in 10 days.