Quote:
Originally Posted by Healthgirl
It seems you are as determined with your research efforts as I am in refusal to accept this garbage diagnosis. I am convinced there is a metabolic error which won't allow me to absorb nutrients -some of which are copper, iron, and iodine. I know it's genetic, and we have the EDS diagnosis, but I don't believe that it's that simple. I don't think I have defective collagen and connective tissue. I think it's a metabolic mutation.
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You might want to read this new post:
Small fiber neuropathy
This new poster tested positive for a DNA mutation involving familial dysautomnia and two others so far.
Perhaps seeing a genetic specialist may be helpful for you too?
(rather than neurologists, rheumies)
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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