I'm not sure how to post but here goes. After many years of many symptoms, including mis-diagnosis of MS, I ended up in hospital last week. Severe nerve pain in Sacral area, loss of feeling in legs, headache, pins & needles, left side. I have Joint Hypermobility syndrome & some Osteopath Arthritis so assumed that was linked. However got an MRI (in an Osteo ward), junior Doctor comes with result tells me I have small Cysts on my spine, nothing they can do, sent me home with a letter for my GP and copy for me. I saw diagnosis was Tarlov Cysts. I'd never heard of this so, as you do, I hit Google! I'm now swimming in information but it's not helping because I don't know how I'm supposed to manage this condition. I live in Scotland and it seems that there are no specialists in the UK. I'm still in pain, my legs are weak, left hand shaking each time I lift anything and I have a constant blinding headache with nausea. It's really good to know that there are other people out there who can empathise because they're going through the same thing. I'm wondering if there's anybody else on the forum from my neck of the woods that has a bit more experience with the health profession. Also any tips on how to function as normally as possible. In one way I'm glad I can put a name to my symptoms but they seem to be getting worse and I'm damned if I'm lying down to them.