Originally Posted by Healthgirl

I am trying to remember, did you and your sister live in the same place or visit with each other very frequently when the sfn came on?[/QUOTE

Hi Healthgirl. My sister spent a lot of time at my house at the time of onset. It stared in both of us in December 2012. It was within weeks of each other as we were both seeing neuros that thought we were mad. The fact we were both seeing one at the same time they found quite unbelievable. Sister sent to see a shrink. I was sent to see someone about health anxiety! I told the neuro this and his reply was well others in family would be affected like husband and then said because me and my sister both have inflammation of nerves it must be genetic. I said well proff I saw in London said ours wasn't a channelopathy . He said don't take too much notice of that and said see what prof says in Oxford. He can check for other genetics. I'm going to ask them about the one Kiwi and Mrs D mentioned .if the specialists in Oxford can't give me any answers I'm at the end of the road.