ShaggyChic,

I had partial luck with desensitization but I had to use the softest things imaginable at the beginning. That said, even after many months of working at it I still had residual stinging that just wouldn't go away. For me it was very low dose ketamine infusions that knocked it out. I had a similar reaction as you to sunlight and really couldn't stand for direct sun to hit my leg. Kind of a challenge in Texas. Over time as my system wound down thanks to ketamine I can now tolerate a sun beam without trouble. If you haven't had infusions it might be worth checking into. My protocol is atypical with fewer side effects than the 10 day regimen and it still has been a game changer.

I hope you find relief soon,