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Old 05-10-2017, 03:56 PM
nemsmom nemsmom is offline
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
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Erin, I'm so sorry about your Dad.

Life has been busy here.

My kids are almost teenagers now! My daughter is a Mathlete at school and just went to the Oregon Writing Festival last weekend. She wants to go through all the schooling to work for NASA. One of her teachers just recommended that she go to space camp in the summer. Unfortunately the scholarship applications for this year are already closed, and we can't afford $999 plus travel. But we will most definitely be applying in October for the following summer! I have to say though, I have mixed feelings about sending her. It's an amazing opportunity, but it will be the farthest away from us she has ever been. Now I know a little of how my Mom felt sending me to South Korea when I was in eighth grade.

My son is excited to almost be done with grade school. I'm sad that after next year my baby will be in middle school! He's growing so fast and changes his mind regularly about what he wants to be when he grows up, understandable in the fourth grade. At one time recently he wanted to become a doctor to cure disease. He's such a sensitive soul, he just wants to make everything better.

My whole team of doctors has changed. I absolutely adore my new MS specialist. My primary seems very caring, I'm still deciding if she is the right fit for me. The neuromuscular neurologist seemed very caring and helpful at first. But after he got the results of my genetic testing he completely brushed me off. He's trying to tell me that because I have no known genetic mutation, only about 50% of patients have one, and the nature of my attacks I can't possibly have periodic paralysis. But when talking on a support group for PP my attacks are exactly like many of the patients! So I will talk to my primary when I see her next week and see if she can help me.

We're going on a family vacation in two weeks and I can't wait! I know I'll be spending a lot more time resting than I have in the past, but it will be nice to get away!
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"Thanks for this!" says:
Aarcyn (05-13-2017), Debbie D (05-17-2017), Erin524 (05-10-2017), Kitty (05-10-2017), tkrik (05-15-2017)