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Old 05-15-2017, 01:19 PM
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
Posts: 791
8 yr Member
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
Posts: 791
8 yr Member
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Quote:
Originally Posted by LouLou1978 View Post
Hi Healthgirl - No i never had problems as a child. We were always quite well. Our situation was similar to yours, we all got symptoms about the same time. I mean, within weeks of each other. I asked the prof. and he shrugged his shoulders and didn't think it was connected. Healthgirl, do they they think you have EDS?
Yes, that was the conclusion reached by my new young neurologist. She had all the assorted files on my case and had two children (med students) ask questions about the me and the kids, as did the genetics department who had no solid answer as to why we could all be affected so severely in the same time frame. There answer was "something heritable/connective tissue realm/ nervous system and then sent me to rheumatology. Rheumatology sends me to neurology. They send me back and fourth to each other. They all scratch their heads and say it must be autoimmune on top of EDS, but no one wants to keep trying to figure this mess out or try treatments.
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"Thanks for this!" says:
Notsohappy (05-17-2017)