Quote:
Originally Posted by Healthgirl
They all scratch their heads and say it must be autoimmune on top of EDS, but no one wants to keep trying to figure this mess out or try treatments.
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Frustrating, isn't it? With my latest dive into the biotinidase thing, this pediatrician in Detroit who spoke with me even seemed thoroughly disgusted that my internist didn't event ATTEMPT to learn anything to help me interpret my results. You'd think just out of curiosity, if not out of a sense of duty to her patient, she might have at least tried. Nada.
I've debated trying to get in to see a metabolic specialist at Hopkins, but I'm so disgusted with mainstream medicine right now that I could scream.