Junior Member
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Join Date: Apr 2017
Posts: 14
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Junior Member
Join Date: Apr 2017
Posts: 14
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Minor updates
Vitamin B6 status 23 on the scale of 9-27. still waiting for vitamin b1 and e.
exome sequencing is WIP.
Done with antibiotics
Diarrhea has nausea stopped.
I saw a new neurologist, his conclusion was that my neuropathy is light, but the anxiety levels are very high. The meeting with him was a relief. He did mention that the familial dysautonomia mutation sounds interesting.
I have been wearing sandals the last two weeks and that is helping me the burning feet, I do still have pain episodes, but less.
I stopped the supplements as I thought it might have added to the diarrhea and nausea. I might try to take the ALA again.
I saw a skin doctor who is also a genetic specialist. They will review the skin biopsy taken and asked they look for a ATP2A2 mutation in the exome sequencing. He wants to rule out darier disease.
So, more to come. I'm feeling good less stressed.
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