Hi janieg & Healthgirl

Just to add something, which may be slightly irrelevant, to your EDS discussion, (Ehlers-Danlos Syndrome). I recently watched an episode of the TV series "Code Black" where a young woman was diagnosed with EDS in the ER - by chance - supposedly difficult to diagnose.

Unfortunately I've deleted it already from my recorder but I'm fairly sure it was Series 2 episode 10 - you may be able to find it online. Given that it's a TV show with heaps of 'artistic license' there may not be too much useful info in there for you.

All the best for finding something that helps you to manage the condition.