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Old 05-25-2017, 04:41 PM
Jane1 Jane1 is offline
Junior Member
 
Join Date: Aug 2016
Posts: 24
5 yr Member
Jane1 Jane1 is offline
Junior Member
 
Join Date: Aug 2016
Posts: 24
5 yr Member
Default Saw Dr Weiss today

Yes, he had a cancellation and got me in earlier. I have done better in some ways but the disease seems to be getting worse. Have started strangling, and arms are weaker. I can walk without falling now but stagger terribly when I'm flaring. Dr Weiss was very professional, and said he could see where my previous treatment was "messed up." Based on my clinical manifestations over the last two years he felt I clearly have mg. The Drs in my home town had tapered me from 60 mg to 10 mg of predinosone. I will say that I felt better at 30 mg than I have felt in a long time. Dr Weiss has me raising The prednisone to 30 mg for a a month and keeping Mestinon the same. He wants to go slowly and methodically . Thank you for all of your concern. I think I am from the "show me" state because I tend to want to slide back into denial... Dr Weiss said with my test results thus far and my symptoms that it couldn't be anything but MG. So there is the rest of the story
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"Thanks for this!" says:
ErinBear (05-25-2017)