Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Duh.
And the doctors who did that fast taper could have killed you (via an adrenal crisis and MG crisis).
Dr. Weiss is highly regarded. I hope he came up with a way for you to have crisis treatment, as well as "regular" treatment. Did he give you a diagnostic letter for your files? You can ask him for that. Any time I have a significant diagnosis, I make sure that I have a statement about what the diagnosis is, how it was made, etc. That will make dealing with other doctors easier.
But Jane, your "story" is only beginning. Living with MG is the real battle. At least you now have a doctor in your corner.
All my best,
Annie
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