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Originally Posted by Kmperkins
Hello all!
Some positive news, I met with a rheumatologist who specialises in Sjorens. Her first words were you can't discount Sjogrens based on the blood test alone (music to my ears). She carried out a schirmer test, which showed I was below normal in both, one much more than the other. She also did the saliva test which showed I was under.
I have been booked in for an ultra sound on my glands in two weeks and then we go from there.
@Hopeful, I raised the concern of the small fibre neuropathy with both neurologists but they said I did not show burning pain so it was unlikely. I know there are def some neurological things going but my hope is if I get the sjogrens diagnosis the neurologists won't just palm me off as a depressed young girl. (When I say young I am 30, but in these appointments with doctors they make me feel about 12, dumb and 12 to be precise).
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I do have extreme burning with small fiber. I happy for you that she is testing further. You are young but that does not mean they have the right to make you feel dumb. Do your research and you in there sounding like you are well informed. If they make you feel dumb nicely request the speak to you in laymans terms. I've worked with doctors who do that sometimes they need to be called out on it.
Good luck with the future testing!