Had 2nd opinion with main Neurological hospital in London, said pretty much same as yourself: ruled out MS etc. but no definitive diagnosis of WMSN, unless they do nerve biopsies which they did not want to do. Referred to pain management clinic, not much help there either except for prescription for pain killing meds. which he does not want to take. Now waiting for referral to a Counsellor to discuss dealing with stress!!
He tries just to get on with his life but quite self limiting as excess of walking for example, causes him to suffer more next day. After all this still looking for help!! Anyone reading this, please post your experiences etc. Thank you.