Originally Posted by hopeful

Hi Gail,
Welcome! I can almost hear your level of anxiety jumping off the page and I remember it well. Trust me it settles down once you have had neuropathy for a while. I have had it a little over 3 1/2 years and I am not so afraid anymore. I try not to think too much into the future. Take it one day at a time.
Be smart learn as much as you can. Write a list of questions for your doctor before you go so you don't forget anything. I make one for myself and the doctor so we can both look at them as we go through them. If you can take someone with you who can write down the answers. Sometimes we are so overwhlmed by what we are hearing we forget what was said. Find a doctor that you think you can make a good connection with because you will probably have to see them a few times a year.
It is true the reason for a lot of neuropathies is unknown (idiopathic). I have had every test imaginable and still have no answer. They say it could have been a virus or bacterial infection.
Hang in there and keep coming back!! I have gotten so much from this site and everyone on it. They help me to feel at least somewhat comfortable with what is happening to me. It is a great group!!!