Join the club.

I first got a diagnosis of MG very easily, but I never was positive. As a result, other doctors said I wasn't really MG, and that stuck in my head. Then, there were all the negative tests, so I thought well. . .

However, on the other hand, there was something they could not explain. My body was responding to Mestinon, and they didn't have a reason for that. Plus, I have a thymus, but they were saying that is not a marker for MG.

Yet, they -- for years -- refuse to believe that I could be one of the 10 percent that is neuro-negative.

A bit off topic, my primary physician thinks I have Lupus, because I appear to have it to her. My sister was the first one who thought I had it, because I have the same symptoms as a co-worker of hers.

s it even possible I have two hard to diagnose diseases? My doctor showed me pictures of patients w/Lupus, and I have the same symptom (swelling, hair loss, swollen finger joints at the base of the finger, fatigue, and I used to have rashes -- not the butterfly one). I never showed positive for that. I guess I'm consistent like that - LOL.

The thing with these disorders is that it can take a long time.

I went back to my old neuro. He's semi-retired, and he referred me to another neuro. She was the one who shrugged it off and went with neuro-negative. Hopefully, you'll find some answers, OP, but you have to be consistent and willing to look like a hypochondriac.