Member
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Join Date: Jul 2014
Location: California
Posts: 162
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Member
Join Date: Jul 2014
Location: California
Posts: 162
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I've seen somebody on YouTube who is doing IVIG at home. That person (Mary Frey) has a port, and she was trained on how to self-administer the treatments by a home nurse. She is not using it for myasthenia gravis, but as an experimental treatment for cystic fibrosis. If you want to look it up, the YouTube account is The Frey Life. I imagine it would be hard to get this approved for home treatment. Depending on your insurance coverage, it could be difficult to get Sub-Q treatment approved also. I know that I was told it would never be covered, and I would always have to go to the clinic for IVIG treatments for the year that I was on it. I inquired about it also.
Best wishes,
Erin
Last edited by ErinBear; 06-03-2017 at 12:01 AM.
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