Dear Douglas,

I was diagnosed with Profound PN in 2010. Like you I feared the it would spread upwards through my entire body. It is 7 years later, and it has not.

I have, however, developed Small Fiber Neuropathy (damage of the small fibers in my skin). I did not have PN of my arms and hands when I was tested in 2012.

I do have severe osteoarthritis of my hands, so I cannot pick and hold heavy things easily, BUT I don't have the numbness of PN, which is a blessing.

Fear is natural, but can be as crippling as any physical disorder.

A brief course of an antidepressant or anti anxiety medication might help you rise beyond your fear at the physiological level.

As you enter into the world of Immune Disorders you will be challenged in many ways. Ask us your questions and we will try to help you.

Regards, ElaineD