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Old 06-14-2017, 11:00 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, Smeds, welcome back!

MG DV is called binocular double vision. If you close one eye, the DV goes away. Try that and see if things improve!

A regular ophthalmologist is out of their depth with MG. A neuro-ophthalmologist is the one who can do certain tests to confirm the ocular MG is back. They can verify the DV as well.

When was the last time you had some basic testing done (thyroid, vitamin B12 & D, ECG, blood pressure, metabolic panel)? I agree with your neuro that something might be exacerbating your MG, but that isn't as hard as it seems! Sounds like your GP doesn't want to work too hard! Many MGers have other disease states. A few simple blood tests can be revealing!

Are you on any drugs? Care to share what they are? Some drugs do exacerbate MG, as can the summer heat. I don't know what country you live in, but seasons may not be the same there as here.

Hormonal changes can also affect MG. So, yes, after years of being symptom-free, you can have a rebound of symptoms. Sorry!

Have you had IVIG before? If so, did you do well with it? What about Mestinon?

Some research may be needed on the part of your PCP. If that doctor can't be bothered, then get a 2nd opinion. Many of us have other medical issues along with MG. They should be checking those very common issues (above) out.

I hope there is someone who has had a similar experience that will speak up. There's nothing like having someone to talk to who has gone through the same thing!

Annie
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