Hello Kapaalini: Welcome to NeuroTalk! I trust you will find the time you spend here to be of benefit. I haven't had any problems with facial grimacing. But I have what I typically refer to as a restless leg syndrome sort of feeling throughout my body 24 / 7. I'm an older person though & I had chicken pox when I was a child many decades ago now. There is a movement disorders forum here on NT, along with forums on many other topics. You might consider posting your situation in the Movement Disorders forum:

https://www.neurotalk.org/forum65/

One additional possibility might be the General Health Conditions and Rare Disorders forum:

https://www.neurotalk.org/forum2/

Bests wishes...