Heed Annie's warnings! I'm newly diagnosed, young and stubborn... and currently sitting in the hospital for 11 days as I go through plasmapheresis. 😧 Even after 3 of 5 treatments, my symptoms vary day by day and sometimes hour by hour.

And as scary as a crisis is, it's kind of more scary thinking about how quickly you get used to worsening symptoms.

I went to the ER with symptoms that mimic a heart attack - cold sweat, palpitations, mild shortness of breath with slightly low O2 saturation. I was reluctant to go! I was still mobile, I wasn't struggling to breathe (I thought), just in taking a deep breath, etc. Everyone's main symptoms are different and a crisis can look different in everyone. Unfortunately, it sometimes takes experiencing something yourself to know what that point is.