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Old 06-21-2017, 10:43 AM
TexasTom TexasTom is offline
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Join Date: Jun 2015
Location: Austin, Texas
Posts: 112
8 yr Member
TexasTom TexasTom is offline
Member
 
Join Date: Jun 2015
Location: Austin, Texas
Posts: 112
8 yr Member
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John,

Care does vary. My MDS sets aside 30 minutes per appointment, and likes to see three month follow ups (sooner when ramping & new; less often when stable and doing fine). She is fantastic.

I highly recommended her to everyone in my Boxing Class. Well, she has a full practice and not seeing any new patients.

Everyone who switched from Doctor X to her had had improvements. She is also proactive about Exercise, Diet, and referring people to a sleep specialist (I have central apnea issues, and need my CPAP). Doc X doesn't believe in Exercise and pretty much tells everyone there is nothing to be done.

One issue I've personally seen was Doc X kept ramping up medication levels as "Parkinson's is progressive". My Doc had people REDUCE their medication levels to "acceptable amount of tremor". Some it to be expected, it's a balance. Folks who reduced were doing my better!

If your Doc thinks a 10 minute visit once a year is all you need, find another doc (MDS!)

We owe to ourselves to be our own advocates.

Battle each issue as it comes!
__________________
Born 1958. Diagnosed PD 2014.
Meds Sept 2016: 5x daily: 2 - Sinemet 25/100 + 200mg Comtan; 50/200 ER Sinement (bedtime).
Oct 2016 - DBS - bilateral GPi (PD & Dystonia). Still a work in progress. (Reduced meds to 4 - 25/100 & 50/200 ER Bedtime daily; but need six months to see how DBS/Meds play out)
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"Thanks for this!" says:
johnt (06-22-2017)