Quote:
Originally Posted by alice md
Jana,
I wish it was so simple, there is an excellent review by Michael Ben-Atar, which goes over all the tests that are used for the diagnosis of MG.
there is also another study that shows that in patients with seronegative MG it is not that rare to have a normal SFEMG.
the problem is that many neuromuscular specialists do not accept those studies, or have all kinds of explanations as to why they have such results, and think that it is impossible to have a normal SFMEG in a muscle that is weak by myasthenia.
this is one of the "windmills" I am trying to fight. and it is not going to happen in one day, if at all.
my suggestion to your friend it to find a more open minded neurologist, that does not think that this is an "infalable" test.
alice
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Dear Alice,
I know this is a really old post, but I'm desperate for help. You write:
"there is also another study that shows that in patients with seronegative MG it is not that rare to have a normal SFEMG"
Do you know where I can find this? I have been treated for (seronegative) MG the past year, but now, after my third negative SF-EMG, my dr has changed my diagnose from MG to unclear muscular weakness. He now believes it is functional, something I can physically train to become better. I have a feeling he is wrong.
I have been on Mestinon, Prednosolone, and immunosuppression (Prograf) the past year. It has helped me gain so much strength. This makes be believe it could be MG even if my dr doesn't think so. So I need to read and find out as much as I can about if it is possible to have seronegative MG AND negative SF-EMG. The SF-EMG was made when I was really, really weak, from not taking mestinon for 22 hours. And the dr who performed it is a specialist who has worked with those tests for many years.
I am so thankful for any response!
Kind regards from Europe