Hi, Texasron! Can we call you Ron? Welcome to the forum!

Has anyone checked your vitamin B12 level? Thyroid? Celiac disease? Vitamin D?

If you do have those checked, you need to get copies of the results. Some people have a neuropathy even when a B12 level is in the normal range. The test reflects what is circulating and not necessarily what is getting to the tissues!

When you have double vision (DV), does it go away if you close one eye? That's typical of binocular DV, seen in MG.

Has anyone done the Acetylcholine Receptor Binding and Modulating tests? The MG MuSK test? If so, did you get a copy of results?

That sort of fatigable weakness that you describe is the hallmark of MG. A brain MRI will show nothing in MG. A chest CT sometimes shows either thymic hyperplasia or a tumor (not common). Has anyone done a chest CT?

You can have more than one thing at a time. MG doesn't cause a neuropathy. It is quite possible that you do have MG. If you EVER are unable to move, breathe, or swallow, you need to dial 911. Make sure they know you might have MG. Any ER can run the basic MG antibody tests! Being that weak is dangerous, no matter the cause.

In an ER, or a doctor's office, they can check your oxygen saturation (O2), arterial blood gas, and pulse. When MG becomes worse, the heart works harder to provide oxygen to the body (O2 is reduced). When the heart can't accomplish that, the O2 tanks.

Seeing a pulmonologist may be revealing as well. They can do breathing tests specific to MG (MIP and MEP). But you really need an MG expert for evaluation. Anyone know any in Texas? I'm assuming you're from Texas. Are you?

Stay out of the heat!!! If you do have MG, the heat makes the disease become rapidly worse. If you become too hot, cool down immediately and then rest or sleep. Are you better after a nap or sleeping? One of the first signs of MG is needing to nap. Of course, that's also a sign of a B12 deficiency and other diseases.

MG experts say that if no one thinks about MG, diagnosing a patient takes a long time. Once they think of the disease, it usually takes days. Good for your son for thinking of MG. Now, make sure they do the right tests and get you some help if you have MG.

Please take it very easy in the meantime!!! What else can we help with?

Annie