Hey Monster (Betsy, I thought I came up with that name uniquely! lol obviously great minds think alike!)....
How's it going? Anyhow, I wanted to talk about nausea (having spent large amounts of today with my head in a bucket! I think it's releated to the blood pressure and headaches - but I have given up trying to work out what is what is what!). Anyway - I find (personally) that the nausea spikes when my pain is bad and when my blood pressure goes too low. It sucks! However, I take domperidone for it and I find that helps quite abit. (motilium). Oh gosh! just while I was trying to discover the US form of domperidone.. guess what it is? yep, an inhibitor of dopamine... guess what one of the causes of dystonia is? yep, you guess it, dopamine? so... my drs appear to have had me on a med that is making my dystonia far worse! geez... a phonecall to the neurologist may be needed.
Anyhow, after that amazing discovery... I have forgotten where the rest of this was going! Just going to say I know what the nausea is like and it sucks. I have found that Pepto-bismol helps abit.
Your dr sounds awesome!!!
I am so glad your mum agreed to sky diving

It's going to be great

I'm looking forward to it! Might even drag you zorbing if I find a centre that will let us Zorb! (actually, no, rolling down a large hill suspended in a 10ft bubble with a bucket of cold water could be rough!).
About mums and health - mine is unique, but rocks. As she is a nurse (orthopeadic army) she has quite a background in stupid limbs, just none in chronic pain! she has come up with tons of innovative solutions which have really helped over the years - without her I know I would be on a PEG/ NG feed and would probaly be at alot worse now! admittedly there are times she drives me insane about the RSD. Your mum does sound great
Love ya tons and tons and more later!
Froggsy xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx