Hi 1 to talk

I can't remember if I introduced myself or not - I shouldn't be kidnapping Linmaries thread but I just wanted to say hi. I am 21 and live in the UK I have full body RSD and have had it for 5 years.

RSD is a very hard disease to get - not only are the symptoms awful but it seems to destroy eveything around you at times as well - relationships, work etc and it is HARD. It is hard losing friends, relatives that don't believe you, not being able to work, do things, see people etc.

Are you under a pain mangement specialist? It sounds like you could benefit from something like a pain mangement course. You sound (justifiably) very angry about what has happened and what the RSD has done to your life - which I can FULLY understand and how it affects your relationships. Do you think that your family would react better if they saw you trying other methods to manage the pain? these courses work on helping you find coping mechanisms to cope with the pain - through medication, meditation, deep breathing, stress relief etc and look at the effect of diet, exercise and pacing. They also look at sleep, stress and lots of other things and how they affect life. They have had some good results - and they might help you cope better, as it sounds like life is really rough for you at the moment.

I really hope you are not offended. I have severe RSD and am very disabled from it so I DO understand how bad this disease is - it's just that all your emails contain such mental pain as well as physical pain (understandably in your situation) that it sounds like something like a pain mangement program or a pain psychologist would be really useful for you.

Love

Frogga xxxxxx