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Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Mike,
It is nice to see some of the old gang are still here!
Yes the symptoms came back with a bang the minute I increased my physical activity. My PoTs consultant has asked my gp (primary care) to write me a prescription for mestinon today. I actually threw all my mestinon out a few months ago as it was two years out of date.
In the meantime I have been taking Huperzine A which is like a natural mestinon. Up until a few days ago this was working and resolving the ptosis but its stopped working now. 9 days of ptosis and I am going nuts yet I lived with it for 9 months solid back in 2007.
Thanks for the welcome back Mike! Its "sort" of nice to be back here.
Rach x
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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