I live in Arizona, too. Phoenix area. The hot months really drag me down, but I spend as much time as possible in the air conditioning.

My job can vary from active to sedentary. I really fell off when I started presenting symptoms: ptosis, difficulty with swallowing, weakness, then unsteady gait. My employer asked me to go onto the Disability program (union job with a big company) until I got diagnosis, about 5 weeks. After spending a week in the hospital getting plasmapharesis, I spent another two weeks gaining my strength and co-ordination back.

I had to have a meeting with management to get the OK to go back, and have been working full time plus necessary overtime since. I've done 50 to 60 hour weeks regularly. The weekends usually involve a lot of sleeping.

I'm not in very good physical shape, rather overweight, but I seem to do all right. I need to work as much as I can to make the bills, so I do what I have to.