Just wondering, does the doctor you see for your MG have you come in for regular visits, or only if YOU feel the need to see them?

I know she's (neurologist) waiting to see what the super-specialist at Yale has to say, (appointment in 2 weeks, been waiting almost 7 months to get in there), but it seems like if she never saw me again, they'd just keep refilling the pyridostigmine prescription and not care one bit.

Took 16 years to finally get someone to make a tentative diagnosis, even tho 6 years ago my ophthalmologist diagnosed it as MG and I've seen so many doctors since then trying to get it confirmed (AChR negative, EMG negative, no blood test=no diagnosis around here), so it's not like I can just dump her for another.

Just wondering should I insist she step up, or just keep figuring out and handling things on my own, which is what I have been doing for so many years anyway? Seems like she should be doing something, but then again, what would she do if I am managing myself to avoid having worse problems anyway?

So what do YOUR doctors do for/with you?