I just read your post and am sooo happy you found a good doc. I am sad, though, that you have full body RSD. I hope the new meds can get you back to enjoying more of the things that you love.
Just want to give you some encouragement - You said you would never get married. Not all men want to have children. You may find a prince charming that is so in love with you that he doesn't care. Actually, you probably will. You are so smart & beautiful. And don't forget that someone just may come up with a cure. By the time you are old enough to get married (I personally think you should wait awhile ) someone may have a cure.
Anyways, your new doc sounds so good. I'm glad you found someone you can trust & believe in.
Linmarie