Hi Annie and Rach73

I am doing or have done just about everything you both mention, but not quite everything! Thanks very much for your detailed responses!

The thing is that my now-chronic headaches (about which I am now journaling in painstaking detail) started out of the blue, all of a sudden— right at the time my first real MG symptoms started! I am by no means ASSUMING they are related; I was just wanting to know if the correlation between MG and headache existed in the experience of any of this group's members.

Meanwhile, here's the best of several relevant sources I've found on PubMed.

Nishimoto, Y., S. Suzuki, K. Utsugisawa, Y. Nagane, M. Shibata, T. Shimizu, and N. Suzuki
2011 Headache Associated with Myasthenia Gravis: The Impact of Mild Ocular Symptoms. Autoimmune Disorders 2011:840364.

My summary of the article: Given the rather high frequency of patients in the MG study cited above who report headaches— esp. tension headaches—there might well be a connection indeed, whose indirect nature does not make it unimportant.

Nishimoto and colleagues write that, despite the lack of a “direct pathologic relation between MG and headache,” the following indirect relationship may well exist: “Head dropping and fluctuation of ptosis and diplopia would accelerate visual fatigue and/or stiffness of the neck, which could be the most important precipitating factors of headache associated with MG.”

Again, rather than assuming there is or isn’t such a link between MG (its onset? spikes in symptoms??) and headache, I am hypothesizing that some of us with MG might experience such a link.

I have consulted three doctors about the headache already, and will raise the issue with the two specialists with whom I have upcoming appointments. Meanwhile, just throwing this message out in case it resonates with anyone.