Dear echoes,

The category beyond 'severe' is 'profound'. i have profound PN in two nerves in both legs and severe PN in the third nerve, diagnosed first in 2010, but developing for about 5 years before that. I don't feel the test, either. It was repeated by my current neurologist in 2013. With the same results.

This was the original diagnosis:

INTERPRETATION:
1. PROFOUND AXONAL NEUROPATHY: RIGHT AND LEFT
PERONEAL AND TIBIAL NERVES.
2. PERIPHERAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND
TIBIAL NERVES.
3. RIGHT AND LEFT SURAL NERVE NEUROPATHY.

Since the diagnosis I have become almost completely disabled by the PN in my legs. The calves have atrophied markedly and I wear braces, and walk with a walker.

I do NOT have PN in my arms and hands, but I do have SFN in the skin of my upper body. I take 3600 mg of Gabapentin for the pain (often called 'skin on fire').

I wish you the best possible outcome with your PN.

Regards, ElaineD