Thanks Annie, I am going to read these again and reread and thankyou again. I hope the summer is not too severe for you. it is really cold here and that helps me so much. I am stunned to think I should have had a result 9 years ago ?? Why did I nearly have to die on the operating table with a respiratory crisis - to get enough data to convince the "experts". I have always felt that the MuSK result was odd... Yes, I have just recently had it repeated as now my new opthamologist has said MG... and my Physician argued against the idea then did a quick eye test ... and went ...hmm... and ordered the repeated tests. I am still waiting.. Yes, I am still on low dose steroids and will be for life. Dr after Dr has told me that my dose is too low to affect MG. Too low to affect results and too low to relieve symptoms of MG. What can you do ?