Junior Member
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Join Date: Nov 2009
Posts: 76
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Junior Member
Join Date: Nov 2009
Posts: 76
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The Endos seem to think I am on too much ( low dose ) cortisone for Addisons Disease and try to get me lower but then yes - I feel much worse. So yes the low dose cortisone helps my other symptoms whatever is causing them. I have had breathing tests a few times and it is atypical asthma... ventolin no big help but cortisone is... But too much cortisone as one large dose a day makes me worse again. It has puzzled a few Drs.
It was interesting to see the Mayo reference range for MuSK is >0.2. My result in 2008 was 0.02. On cortisone. I checked and our Hospital has a reference range >0.06.
Sigh..
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