Quote:
Originally Posted by ENIGMACODE
Thanx Little Paw (I like that name)
And thank you catra - everyone is really supportive here. This is a nice place!  I needed a break from the 'Facebook Format' dealing with some of the drama and lack of accurate description in order that folks help each other effectively. The shame is everyone is in sooo much pain that it naturally gets in the way of describing the problem. In my six years of progression, I can't say I'm impressed with doctors (in general). When you find a knowledgeable doctor you hang on for dear life. And a growing problem, (as you all know) is the increased negative press toward opiates. I've handled myself well (so far), trying to be articulate and patient. But when you've tried everything, you start to see clinicians giving up on you. Its inevitable and provides constant stress, struggle and depression. The good news is that the toe is feeling much better. Thanx for all your encouragement and may we all have better days ahead |
I totally understand. Having RSD is NOT easy and I agree that with the pain we are all in, the added stress, etc...it's hard sometimes to communicate effectively. Add to that all our own individual experiences/baggage that we bring to the table and it's a wonder we get on at all sometimes...lol. But this group is very supportive with everyone...I really don't know what I would have done without this forum. I've had my RSD for 8 years now...such a long crazy journey and I know there are others who've had it MUCH longer than me. I agree that finding a good doctor is key...I've had lots of bad ones...or useless ones. I love my current doctor...he's always willing to try new things and every appointment with him fills me with hope even if in the short term I'm not able to get much relief. I have my fingers crossed that I will be able to do this new drug study that my doctor's doing and that soon I will be able to get the DRG stimulator. I have high hopes that one of those two things will be helpful. So there are new things on the horizon even if you have tried all the standard treatments with no relief.
Again...so happy that the toe is feeling much better.