Finally got to see the super-neurologist at Yale.
He said he doesn't seem to think it's MG, but he's re-running ALL the tests, including emg's, dang it, and then we'll see. Only, it will be well into September before it's done (long wait for appointments).
Insists I have to see yet another neuro-ophthalmologist (this will be number 4, tho in fairness #1 should not be counted because he was already senile when I saw him, and #2 and #3 were partners who just stopped communicating after my second visit, wouldn't answer me, wouldn't answer my doctor's calls, just never heard another word) because the just-an-ophthalmologist I have been seeing for over a decade couldn't POSSIBLY be treating me sufficiently.
Going to re-run thyroid stuff, again, going to re-run vitamin stuff, again, going to re-run rheumatoid arthritis and related stuff, again, even tho it has all been run more than once in the last 9 months, and I gave him all of the results. In the last 9 months I have been to orthopedists, 2 rheumatologists, cardiologist, endocrinologist, ENT, 4 different ophthalmologists (two my regular, 2 other specialties), GP, physical therapists, neurologist, and now super-specialist neurologist and new neuro-opthalmologist and I feel like a friggin' ball in a pinball machine. And for what----so far, nothing but getting flipped to more friggin' doctors who only flip me to others because no one wants to take responsibility for anything!

But, the mestinon WORKS. People who know me are amazed. Other people, who barely even know me, can even see the difference. It WORKS. I run into people I barely know, in town, and they say things like, "I see you out walking the dog, and you look REALLY GOOD! What's going on?!"
When my regular, must-be-insufficient-ophthalmologist first named MG, I read up on it and it wasn't, "well, that might be it", it was "YES!!!! THIS IS IT!!! This is EXACTLY it!!!!" But, the docs don't think so. But the mestinon works.

So, if it's not MG, then what the hell is it? What else does mestinon work on?

Because I am really not thrilled with being shoved down the rabbit hole , again, to ultimately end up with nothing, again....