Actually, this doctor sounded just like every other doctor I've been to for years, all excited about how he's going to figure this out and be the big hero, and NOT pass me on to anyone else. Same words I've heard so many times before. Including, "so...My job is to figure out if you have MG or not." (because I was referred from another doctor asking if it was MG.)

And then, none of the lab reports tell them what to diagnose.
And then, one of three things happen.
--They refer me off to someone else, not to return to them.
--I just never hear from them again. Won't return calls to my regular doctors, won't return calls to me, no messages, no reports, no nothing. Ask for records to be sent, the only clinical pages that come are a single sheet of their tiny, illegible, hand-scribbled notes, no write up, no nothing.
--They say, "Well, MY job was to decide if you have MG or not, and I say you don't." and that is the end of any discussion. (And if that's what happens this time, I swear I am going to say, "I thought your job was to HELP ME. But if you say it was only to decide if I have MG, then clearly you are working for Dr. X(who referred me) and you can get your payment from them." And then do my best to make them do that.) After all, what have I got to lose at that point, if I am being dismissed, again?

He just sounded EXACTLY like every other one before, especially when he said the "my job is to decide if you have MG" line. My only hope is that, since he is head of the department at Yale, he might just have a bit of pride and arrogance in that, that he won't want to lose. You just have no idea how many doctors I've been bounced through for so many things. Including one of this guy's underlings.

Sure, they look down the rabbit hole all friendly and concerned and helpful, stick out their hand offering to pull me up, then just about when my fingertips are touching theirs, shout "PSYCH!!!" and yank their hand back, walking away laughing.

So, i am still going to keep trying to find out for myself. Wouldn't be the first time I was the one to finally bring the right diagnosis to the doctors, or the second, or even the third, actually (and you should see the look on their faces when they finally realize I AM right)....my hoofbeats are not those of a horse, they're a rainbow-striped, half-checkered, flying unicorn from outer space. But most doctors around here have their head up their backside chanting "if it has hooves, it's a horse. if it has hooves, it's a horse. if it has hooves...."