Hi dtaijo174:

I also have many of the same symptoms. Three years ago, mine came on pretty quickly starting with twitching and cramping - then progressing to pain in the feet, etc. After a 6 month acute phase where things got progressively worse, they stopped progressing and have improved to some extent.

One of the things I've posted on before is the fact that many people with BFS/CFS also present with small fiber loss when tested. Same thing with fibromyalgia patients.

Its unclear exactly how or why all these conditions seem to be linked together, and unfortunately none of them really have very good treatments.

Beyond whatever treatments your doctors recommend, I always recommend:

-Improve your diet
-Take supplements that have shown some ability to help with neropathic issues (see the separate forum on supplements for PN)
-Exercise regularly, to the extent you can tolerate.
-Relax. (Stress can be a big factor in these diseases, so use whatever relaxation techniques will work for you - meditation, controlled breathing, white noise, etc.)

I hope you can find some relief soon.