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Old 08-10-2017, 08:16 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
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15 yr Member
CRPSbe CRPSbe is offline
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CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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I don't mean to burst the bubble, but for me the bisphosponates in such a late stage (diagnosed almost 3 years in to it), did 0 for me, yes it helped the osteoporosis part of the RSD get better and I no longer felt like walking in a swamp (with such frail legs). It got a little "firmer".

But maybe I was a lousy candidate - at least they tried and gave it their all, as I got 5 infusions over the course of a week, one right after the other - yeah, that bad!

Anyway, I wish you good luck with the treatment!!!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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"Thanks for this!" says:
catra121 (08-14-2017), RSD ME (08-10-2017)