Hello everyone. I'm MsBluIs and I've been MIA for a while, but I thought I'd check in.
I moved to a care home in July, 2014. They never should have accepted me. No one at all knew how to use a patient lift, which I've required for many years. So I trained THEM how to use it.
February 2016, I came back home and I've been here since then.
An update on me: I'm 63 now. Had MS symptoms since 1992 but didn't see a doc about it until '95 when an idiot neuro dx'd me as RR. But I never ever had a remission, just continuous progression.
I changed neuros and he changed my dx to PP after my having gone through 8 years of Betaseron, then Copaxone shots, Novantrone (aka Mitozantrone) for a year and 30% loss of my hair.
So I'm PP for 25 years. Quadraplegic, bed-bound, supra-pubic catheter, Permobil C300, Hoyer Lift, adapted van, etc etc.
Anyway, my right arm still "works" well enough to eat and drink, although even it may be gone in another year.
The bright spot for me is that I'll be fitted for a sleek Permobil F5 Corpus next month. It's much less bulky & it can make me STAND!!