I have been passed off from one neuro to another. Waiting on my 3rd. Long story, but had neck fusion. 1 week later, re admitted to hospital. Inability to swallow. It took me 11 days and 3 tries to pass the modified barium swallow test. Got weaker by the day. Came home using a walker. Started PT. Did 10 weeks, and plateaued.

Sent to a neurologist. They tested me for MG. I had 2 different blood tests, both negative. EMG negative. I have a droopy eye. Difficulty with stairs, difficulty rising out of a chair. I feel so heavy & still have difficulty with everything I swallow. They did ice pack test. Negative. I have a tremor in my hand, and have a buzzing feeling in my muscles. Sometimes I feel like my muscles are quivering, and as the day progresses, I am so fatiqued.

Sent to Boston to see Neuro muscular specialist. What a joke that was. Because he asked me to hop, and I got off the ground high enough to slip a piece of paper under my foot, he said my muscles were fine and wanted to know what he could do for me

Looking for answers that nobody seems to be able to tell me. Nobody is actually listening.So tired of feeling like this and just want answers. I also get these little muscle twitches every once in a while. So frustrated.