I'm very happy to report that I saw a big improvement in my walking an hour after taking the Mestinon 30 mg. The neurologist wanted to start with a low dose because he said it could cause diarrhea. My legs are still tired but much stronger and my walking was close to normal. I walked around for 15 minutes before noticing any weakness coming on, and it was minimal. My arms and mouth showed improvement too. I'm still trying to take breaks because I don't want to overdo it.
On another note, my heart rate was 133 at the doctor, and I had been noticing that it was pounding at times since starting the steroids. The doctor is weaning me off the steroids and felt the Mestinon and 1/2 a klonipin would help bring it down, which it did. It was down to 100 an hour after taking them.
My plan is to see a neuromuscular specialist once the acetylcholine receptor antibody labs come back, so I can get a big picture plan for living with and managing this. Because I understand that while the Mestinon helps the symptoms, it does not treat the disease. Thank you for all who have listened and given advice. I realize that MG can bring on serious issues quickly and we have to be careful to pay attention to our symptoms.