Two weeks after returning to work, I could not catch my breath and did go to the ER. I was there 5 hours and they did lots of blood work including Dimmer for blood clots, everything came back negative. I rested and got fluids and the breathing got better. I have also had an echocardiogram. Also had a chest X-ray.

I live in Maine, and neurologists are so hard to get into. The small hospital I work at does not have one. The neurologist I have been seeing is sending to a neuro that also sees patients with movement disorders because I have a tremor in my hand and a buzzing feeling in my muscles. Forgot to mention, most days I feel like a bobble head doll. I feel like my head is all wobbly. The swallowing is my biggest concern. I am down 15 lbs but that is not the way I wanted to lose weight. The shortness of breath comes with exertion, and is not always present. I work a desk job, but I am so fatigued. I just hope they don't tell me it will be 6 months before they can see me. The fellow I saw in Boston wanted to run more tests like a muscle biopsy, but the Dr. he was working under told me there was nothing wrong, and that was the of it.

I just hope someone listens to me, as nobody really is of any help. I appreciate all of your suggestions Annie. I wish you were my doctor. I did take a selfie of my eye, and plan to show it to the neuro. The more tired I get, the worse it is. This sucks! If it is not MG, someone needs to figure this out, and so!